Dear Sam and Connie,
My brother Brett and I have always been close, having gone through a traumatic childhood together with parents divorcing and step parents coming and going, being moved from school to school etc etc we really only had each other to lean on and always trust to be there. Probably doesn't sound TOO unusual does it, pretty common these days I suppose but as the years went by we were thrust into further heartache with our father passing away very quickly with bowel, liver, colon cancer in 2010. He was diagnosed in January and by May he was gone. My brother and I were 7 & 8 when our parents split so having our dad come home to Perth from Cairns to die was very bitter sweet to say the least. In 2014 our half brother ( eldest son from our fathers second marriage) took his life due to severe depression and grief over our fathers passing.
Again this devastated my brother and I and with each of us having our own little families we felt it was time to turn the tables on the crap that had consistently been coming our way and do something fun and positive and bring in the year with happier intentions. So we planned a trip to Japan. Brett's wife Ami being Japanese and my husband Dean and I always wanting to visit Japan, we went for it! It was a trip of a lifetime one to bring light and happiness to our lives once again. We would spend our first Xmas together in years! with us living in Karratha WA and Brett living in Cairns, it hadn't been a luxury we could often afford.
December 2014 we all jetted off from our respective states. We were so bloody excited to be there and be there together. My brother, my best mate and I with our families would be living our childhood dreams, Disneyland and a white Xmas in the snow! Things we thought would never be available to us ever in our wildest childhood dreams !!
A few days into the trip Brett started to feel quite unwell, this progressively got worse and to the point where he was coughing up blood and felt extremely out of breath. He did keep it quiet from me for the first few days because he didn't want to spoil the trip but once I found out I pulled the big sister card and said to him " Japan will always be here, you are my brother so you need to see a Dr ASAP!" next day Ami took him to a Japanese hospital where he was given antibiotics but after a couple of days they had had no effect, so he was given a different type. These made him violently ill and so was admitted into hospital ( on Xmas day!) for IV and further tests. He became sicker and sicker to the point that he had developed viral pneumonia and this in turn become such a stress to his heart that it was only functioning at 10%.
At this point he was transferred to Chiba University Hospital a big teaching hospital and one of the best in Japan. He was immediately placed in the coronary critical care unit (ICU) where they administered drugs to assist the heart and also to try and get a handle on the pneumonia that was taking its toll.
As you would appreciate this was becoming a nightmare that was getting worse by the day. On the 6th of Jan 2015 after being so ill for 19 days my brother, my best mate, my constant, suffered a coronary embolism which caused his heart to stop. He was revived, suffered a further attack and the a quick decision was made to place him into a coma.
So there we were in Japan ( not understanding much AT ALL) with my brother in a coma not knowing what was going to happen, whether he would live or die. I remember the day I went into see him for the first time in his coma and I was in such shock at seeing him understandably I was crying and terribly upset. My husband leant over my shoulder and whispered to me ' they say that if you talk to people while in a coma that can hear you, you should talk to him' Well that was the beginning of a new positive determination. He was going to get well there was no negotiations it was going to happen. I was NOT going to lose my brother.
On the 19th of Jan after a hell of a lot of negotiations with the insurance company ( yes he took out travel insurance, a $126 dollar Woolies travel insurance plan - unlimited) liaising with the magnificent Drs at the The Prince Alfred and the The Prince Charles Hospitals here in Australia, we got the green light to bring him home. In fact I just realised it’s a year ago today that I had to say goodbye to my brother before his Careflight home ( the 19th Jan ) as we left Japan to come home. The Dr's didn't know whether he would make the flight, with his only chance of survival being back here in Australia and with a promise I made to him to get him home it was a chance we were all willing to take. His Dr from the Prince Charles hospital rang me one while we were still in Japan to basically ask me whether there was any brain function given he had suffered a heart attack in early Jan. He didn't ask me in so many words ( although I knew that's what he was asking) but he asked me whether there was any response when we spoke to him. I told him that while I had been talking to him one day he had moved his head to the sound of my voice and that I'd seen a single tear fall down his cheek, I asked the Dr is that a good enough sign? He said yes that's what I needed to hear. That was literally what got the ball rolling to have Brett repatriated back to Australia.
On the 19th of Jan he arrived in Brisbane and was received at the The Prince Charles Hospital. Ami and I had made a pact that we would never leave him alone that if Ami couldn't be by his side that I would be. I said goodbye to my husband and my 2 boys and left home for Brisbane where I stayed with Ami and my nephews and Brett's bedside for 3 weeks. Three weeks of life and death operations. Life support and the removal of blood clots from his lungs and around his heart had us never knowing from one minute to the next whether he would still make it. Like I said I was not going to lose him and so I would sit with him, talk to him endlessly, play his favourite music and on Australia Day I put this biggest Aussie flag up in his room! 🇦🇺🇦🇺🇦🇺🇦🇺 the ICU Dr's and nurses thought it was awesome, we played good Aussie rock that day and they let me stay as long as I wanted.
It was strange I never felt like I was going to lose him, after having lost our Dad and our brother I really never felt like he was going to be next.
On the 7th of February I had to leave to come home and see my boys and my husband. I went in to say goodbye again not knowing, never really knowing whether he would make it and flew home.
I arrived home the next day, cause it can take that long to get to Karratha from Brissy ( I'm sure Sam knows all about distances having done it all on his unicycle!!)
Once the plane landed and we could turn our phones on which I did, there was a message from Ami. I was really scared to read it to be honest, so I waited until I was in the airport safely in the arms of my husband and my beautiful boys, I opened the message and it read " Brett's awake!!!!" I literally fell to my knees and cried and cried and cried with my boys around me. I had so many emotions of relief and pure thanks to the Angels that had been watching over us. I couldn't believe the timing at the time but now I know it was because I needed to be home again with my boys without feeling bad for leaving him.
On the 10th they removed his trachy which they had put in a few weeks earlier to replace the intubation tube. So now with all of that removed he could talk- actually it was more of a whisper.
That day received a phone call from one of the beautiful ICU nurses that had been a wonderful support to me during my stay at the hospital and she said to me " would you like to speak to your brother?" I was so astounded that I could hardly answer but managed to get a yes out. Hearing his voice for the first time since the 5th of January was incredible. My gorgeous husband immediately booked me a flight.
The Dr's, nurses and Ami all knew I was coming but Brett did not. I said to Ami " I don't want give him another bloody heart attack!!" So Ami went in first and said I have someone special here to see you and when I walked in he was facing away from the door looking out of the window. I quietly stepped around to his bed and simply said ' hi my love' and well you can imagine the rest ( sorry guys you're probably in tears as I am writing this).
The first words that came from him were thank you and over and over he said it. I said you don't need to thank me I'm your sister, you're my brother and I would do anything for you, he said I know but you don't understand, you pulled me through, I could hear you talking to me, he said every time I felt like I might slip away you were there holding my hand telling me to be calm and that I would be OK. He said "I can't explain it but you were there". Well that was pretty much the end of us and the onlooking staff there were tears everywhere from everyone.
I know you're story is different but your bond is something I feel very connected to because of my own experience with my brother.
I guess I really wanted to share another story of a sibling bond that knows no boundaries that will move heaven and earth for each other. I appreciate and understand the love and bond that you both have and it touches me so deeply that you are so honest and open about your beautiful bond. I just want to say my brother and I truly get it.
I know this is an emotional read and I hope it hasn't made you too upset Connie and I hope you didn't mind me sharing our story but I felt like you wouldn't mind?
Wishing you and Sam all the love and positivity and healthy vibes I can muster.
Much love Tan, Brett's big sister
I sounded more triple zero than Triple M this morning but got cradled through it by a beautiful man who seems to understand the human condition. His sensitivity got me thinking...
I know that it’s women who are meant to have the whole sensitive thang on lock but I tells you I encounter the odd bloke that feels harder than the average woman, if I might be so bold? Wrong town, I know, I’m just trying to make a point about genderalisations...
Let me hark back to explain…
Hello and welcome! Welcome to my deranged head. There’s another guy here. I call him a ‘guy’ loosely. He’s actually a bi-polar bear and his name is Henry. He’ll butt in whenever the fuck he wants and I refuse to hold myself accountable for his actions. Other than that it’s just me and my cat Thomas and my deceased dad’s worst records, coz they’re my faves.
Hi, and welcome to my place. I must invite you in and offer you a cuppa and some bikkies. These are the best bikkies of all, because unlike every other biscuit in the world, these have no calories. It could be something to do with the fact that they are virtual biscuits, but let’s not get bogged down in the technicalities of the best biscuits in the world debate and move on to the cuppa, in which you can dunk, or not dunk your bikkies. Whether you like tea, coffee, herbal tea, chai latte you can get it here, or not get it here, as the case may be. I am famous for the world’s best cuppa, so please sit and enjoy one with me, it will be the perfect cuppa just for you, the right mix of sweet and savoury, the perfect temperature and the texture is just right. Do you know how I know? Because I virtually brewed it to your specifications.
Since this is my virtual home, I should give you a virtual tour, but in reality, my place is a comfortable little 2-bedroom apartment in Kingston, an inner suburb of Canberra, Australia’s leafy capital. It is quiet here, despite being 4 kilometres to the centre of the city, and it has a calm and welcoming vibe. Because this is my virtual home it is always tidy, always clean and organised with never a thing out of place. (Come on, wouldn’t we all like that in a perfect world?) In real life I am not a fan of the ‘Pop in’ and I must confess the reason for this is that I don’t like people to see the real state of my house. If I know I have guests coming I fuss and carry on until everything is just so. I don’t know why I like to give the illusion that I am cleaner and more organised than I am, because truth be told, I am not piggishly filthy or anything. My home is probably about as neat and tidy, or dirty and disorganised as any other person’s home. It certainly isn’t a display home, but nor is it a cesspit, so nothing to be ashamed of, nor particularly proud of, just an ordinary Australian home, in an ordinary Australian suburb.
Because we live near the city, we live in a small apartment, (we chose location over size) and as a result the boys share a bedroom and we don’t have a backyard, which, until this year has meant no pets. We could fit a cat, but they are banned by the body corporate, and Hamilton is terribly allergic to the little critters. This year, Willoughby’s desire for a pet and the small space we live in resulted in the purchase of 2 little guinea pigs, Doris (Dorby for short) and Cuddles. We buy their food in bulk so we only need to buy it every couple of months or so, which is a good thing, because every time Mike takes the boys to buy feed, they come home with 2 new guinea pigs. The second pair are Pancake and Tilly, and I thought they were joking when they came home with a box with holes poked in it, but out popped two spritely little piggies. The next time they went I warned, ‘now don’t come home with any new pets, just bring the feed!’ Caramel and Daisy are pretty cute.
Then, while I was away recently, they all trotted off to a guinea pig show, and of course, because it is no longer a joke, but more of a pattern, they came home with two more, Mistery and Ruby. So, somehow, this year I have become a crazy guinea pig lady with 8 little piggies, oh, and 2 sons, Willoughby (10) and Hamilton (9).
Back to the virtual tour, remember you have a lovely creamy cuppa, don’t let it get cold before you enjoy it all. As well as being our home, this place is also where all the work happens, I call it the Canberra Love Your Sister Office (Sam has claimed that headquarters is at his place in country Victoria). All sorts of shenanigans go on here. Ideas are hatched, social media is managed, swear jar orders are processed, photo shoots and brainstorming all happen here. It is just as well my home doubles as the office, because a lot of days I feel too sick to go into the office.
Did I mention that I have cancer? When I was 33 I was diagnosed with breast cancer, it quickly spread to other parts of my body and I now live with a terminal chronic condition. Initially, upon medical advice, we thought I would have 6-12 months to live. That was 6 years ago. Besides the fact that cancer kills hundreds of thousands of people every year and ruins many more lives, costs taxpayers a fortune and is just plain nasty my biggest bugbear about cancer is that many people don’t understand what it is that makes the difference between people surviving cancer in some cases, and dying in others. The fact that I’m still here is testament to the pace of scientific discoveries. When I was diagnosed there were no trials available for me, now there is. And I have been lucky to have responded to a drug that usually only works for a few months, but for me has worked for a number of years in that the cancer has not grown a lot in that time. I would like to take the credit for it and say it is because I am a strong person and I think positive and try to eat the right foods, but what it really comes down to is the medical treatment and the new drugs coming out all the time that gives me hope that I’ll be around for a few years to come.